CNU Library Blog

Title: From Whispers to Shouts: The Ways We Talk About Cancer.

Author: Elaine Schattner.

Publication info: Columbia University Press, 2023.

Location: Academic eBook Collection.

Description: It's hard today to remember how recently cancer was a silent killer, a dreaded disease about which people rarely spoke in public. In hospitals and doctors'offices, conversations about malignancy were hushed and hope was limited. In this deeply researched book, Elaine Schattner reveals a sea change—from before 1900 to the present day—in how ordinary people talk about cancer. From Whispers to Shouts examines public perception of cancer through stories in newspapers and magazines, social media, and popular culture. It probes the evolving relationship between journalists and medical specialists and illuminates the role of women and charities that distributed medical information. Schattner traces the origins of patient advocacy and activism from the 1920s onward, highlighting how, while doctors have lost control of messages about cancer, survivors have gained visibility and voice. The book's final section lays out provocative questions facing the cancer community today—including distrust of oncologists, concerns over financial burdens, and disparities in cancer treatments and care. Schattner considers how patients and their loved ones struggle to make decisions amid conflicting information and opinions. She explores the ramifications of so much openness, good and bad, and asks: Has awareness backfired? Instead, Schattner contends, we need greater understanding of cancer's treatability.

Title: Tangles: A Story About Alzheimer's, My Mother, and Me

Author: Sarah Leavitt

Publication info: Skyhorse, 2012; Graphic novel, 128 pages. 

Location: Rancho Cordova campus library. Call number: RC523 .L43 2012. 

Description: "In this powerful memoir the the LA Times calls “moving, rigorous, and heartbreaking," Sarah Leavitt reveals how Alzheimer’s disease transformed her mother, Midge, and her family forever. In spare blackand- white drawings and clear, candid prose, Sarah shares her family’s journey through a harrowing range of emotions—shock, denial, hope, anger, frustration—all the while learning to cope, and managing to find moments of happiness. Midge, a Harvard educated intellectual, struggles to comprehend the simplest words; Sarah’s father, Rob, slowly adapts to his new role as full-time caretaker, but still finds time for wordplay and poetry with his wife; Sarah and her sister Hannah argue, laugh, and grieve together as they join forces to help Midge. Tangles confronts the complexity of Alzheimer’s disease, and ultimately releases a knot of memories and dreams to reveal a bond between a mother and a daughter that will never come apart." 

Title: Stitching a Revolution.

Author: Cleve Jones and Jeff Dawson. 

Publication info: HarperOne, 2000. Memoir, 304 pages. 

Available: For checkout at our Rancho Cordova campus library.

Topics: AIDS Epidemic, LGBTQIA+ history, activism, San Francisco, CA. 

Description: "Against the turbulent backdrop of politics and sexual liberation in San Francisco during the seventies, Jones recounts his coming-of-age alongside friend and mentor Harvey Milk--and, later, Milk's assassination and the ensuing riots that threatened to tear down all they had accomplished. But Jones's political aspirations were put on hold after the emergence of an insidious, unexplainable "gay cancer" that would soon become known throughout the world as AIDS. Demoralized by the tide of death and despair sweeping his community, brutally assaulted by gay-bashing thugs, and faced with the specter of his own positive diagnosis, Jones sought a way to restore hope to a world falling apart beneath his feet.

What started out as a simple panel of fabric stitched for his best friend now covers a space larger than twenty-five football fields and contains over eighty thousand names. The Quilt has affected the lives of many people, bridging racial, sexual, and religious barriers to unite millions in the fight against AIDS.

Stitching a Revolution is a compelling, dramatic tale with a cast of memorable characters from all walks of life. At times uplifting, at times heartwrenching, this inspiring story reveals what it means to be human and how the power of love conquers all--even death." 

Title: Sharing Health Data: The Why, the Will, and the Way Forward

Authors: National Academy of Medicine, The Learning Health System Series, Claudia Grossmann, Peak Sen Chua, Mahnoor Ahmed, Sarah M. Greene

Publication Information: Washington, DC: National Academies Press. 2022.

Start reading: Academic eBook Collection.

Description: Sharing health data and information across stakeholder groups is the bedrock of a learning health system. As data and information are increasingly combined across various sources, their generative value to transform health, health care, and health equity increases significantly. Health data have proven their centrality in guiding action to change the course of individual and population health, if properly stewarded and used. In the context of the COVID-19 pandemic, both data and a lack of data illuminated profound shortcomings that affected health care and health equity. Yet, a silver lining of the pandemic was a surge in collaboration among data holders in public health, health care, and technology firms, suggesting that an evolution in health data sharing is visible and tangible. This Special Publication features some of these novel data-sharing collaborations, and has been developed to provide practical context and implementation guidance that is critical to advancing the lessons learned identified in its parent NAM Special Publication, Health Data Sharing: Building a Foundation of Stakeholder Trust. The focus of this publication is to identify and describe exemplar groups to dispel the myth that sharing health data more broadly is impossible and illuminate the innovative approaches that are being taken to make progress in the current environment. It also serves as a resource for those waiting in the wings, showing how barriers were addressed and harvesting lessons and insights from those on the front lines. In the meantime, knowledge is already available to foster better health care and health outcomes. The examples described in this volume suggest how intentional attention to health data sharing can enable unparalleled advances, securing a healthier and more equitable future for all.

Title: Ethically Challenged: Private Equity Storms US Health Care.

Author: Laura Katz Olson.

Publication info: Baltimore: Johns Hopkins University Press. 2022. 

Location: Academic eBook Collection. 

Description: Revealing the dark truth about the impact of predatory private equity firms on American health care.Won Gold from the Axiom Book Award in the Category of Business Ethics, the Benjamin Franklin Awards by the Independent Book Publishers Association and the North American Book Award in the Catergory of Business Finance, Finalist of the American Book Fest Best Book Social Change and Current Events by the American Book FestPrivate equity (PE) firms pervade all aspects of our modern lives. Unlike other corporations, which generally manufacture products or provide services, they leverage considerable debt and other people's money to buy and sell businesses with the sole aim of earning supersized profits in the shortest time possible. With a voracious appetite and trillions of dollars at its disposal, the private equity industry is now buying everything from your opioid treatment center to that helicopter that helps swoop you up from a car crash site. It may even control how and when you can get your kidney dialysis. In Ethically Challenged, Laura Katz Olson describes how PE firms are gobbling up physician and dental practices; home care and hospice agencies; substance abuse, eating disorder, and autism services; urgent care facilities; and emergency medical transportation. With a sharp eye on cost and quality of care, Olson investigates the PE industry's impact on these essential services. She explains how PE firms pile up massive debt on their investment targets and how they bleed these enterprises with assorted fees and dividends for themselves. Throughout, she argues that public pension funds, which provide the preponderance of equity for PE buyouts, tend to ignore the pesky fact that their money may be undermining the very health care system their workers and retirees rely on.Weaving together insights from interviews with business owners and experts, newspaper articles, purchased data sets, and industry publications, Olson offers a unique perspective and appreciation of the significance of PE investments in health care. The first book to comprehensively address private equity and health care, Ethically Challenged raises the curtain on an industry notorious for its secrecy, exposing the nefarious side of its maneuvers.

Title: Realizing the Promise of Equity in the Organ Transplantation System

Authors: Committee on A Fairer and More Equitable, Cost-Effective, and Transparent System of Donor Organ Procurement, Allocation, and Meredith Hackmann, Rebecca A. English, Kenneth W. Kizer. 

Publication info: Washington, DC: National Academies Press. 2022. 

Available: Academic eBook Collection. 

Description: Each year, the individuals and organizations in the U.S. organ donation, procurement, allocation, and distribution system work together to provide transplants to many thousands of people, but thousands more die before getting a transplant due to the ongoing shortage of deceased donor organs and inequitable access to transplant waiting lists. Realizing the Promise of Equity in the Organ Transplantation System, a new consensus study report from the National Academies of Sciences, Engineering, and Medicine?s Committee on A Fairer and More Equitable, Cost-Effective, and Transparent System of Donor Organ Procurement, Allocation, and Distribution, provides expert recommendations to improve fairness, equity, transparency, and cost-effectiveness in the donor organ system.

Title: Traumatic Brain Injury: A Roadmap for Accelerating Progress. 

Author: National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Health Care Services; Board on Health Sciences Policy; Committee on Accelerating Progress in Traumatic Brain Injury Research and Care; Chanel Matney; Katherine Bowman; Donald Berwick

Publication info: Washington, DC : National Academies Press. 2022. 

Available: Academic eBook Collection. 

Description: Every community is affected by traumatic brain injury (TBI). Causes as diverse as falls, sports injuries, vehicle collisions, domestic violence, and military incidents can result in injuries across a spectrum of severity and age groups. Just as the many causes of TBI and the people who experience it are diverse, so too are the physiological, cognitive, and behavioral changes that can occur following injury. The overall TBI ecosystem is not limited to healthcare and research, but includes the related systems that administer and finance healthcare, accredit care facilities, and provide regulatory approval and oversight of products and therapies. TBI also intersects with the wide range of community organizations and institutions in which people return to learning, work, and play, including the education system, work environments, professional and amateur sports associations, the criminal justice system, and others. Traumatic Brain Injury: A Roadmap for Accelerating Progress examines the current landscape of basic, translational, and clinical TBI research and identifies gaps and opportunities to accelerate research progress and improve care with a focus on the biological, psychological, sociological, and ecological impacts. This report calls not merely for improvement, but for a transformation of attitudes, understanding, investments, and care systems for TBI.

Title: Machines in Our Hearts: The Cardiac Pacemaker, the Implantable Defibrillator, and American Health Care. 

Author: Kirk Jeffrey. 

Publication info: Johns Hopkins Press, 2001. 

Location: Academic eBook Collection. 

Description: Today hundreds of thousands of Americans carry pacemakers and implantable cardioverter-defibrillators (ICDs) within their bodies. These battery powered machines—small computers, in fact—deliver electricity to the heart to correct dangerous disorders of the heartbeat. But few doctors, patients, or scholars know the history of these devices or how heart-rhythm management evolved into a multi-billion-dollar manufacturing and service industry. Machines in Our Hearts tells the story of these two implantable medical devices. Kirk Jeffrey, a historian of science and technology, traces the development of knowledge about the human heartbeat and follows surgeons, cardiologists, and engineers as they invent and test a variety of electronic devices. Numerous small manufacturing firms jumped into pacemaker production but eventually fell by the wayside, leaving only three American companies in the business today. Jeffrey profiles pioneering heart surgeons, inventors from the realms of engineering and medical research, and business leaders who built heart-rhythm management into an industry with thousands of employees and annual revenues in the hundreds of millions. As Jeffrey shows, the pacemaker(first implanted in 1958) and the ICD (1980) embody a paradox of high-tech health care: these technologies are effective and reliable but add billions to the nation's medical bill because of the huge growth in the number of patients who depend on implanted devices to manage their heartbeats.

Title: Becoming Dr. Q. 

Author: Alfredo Quinones-Hinojosa. 

Location: Academic eBook Collection.

Description: "Today he is known as Dr. Q, an internationally renowned neurosurgeon and neuroscientist who leads cutting-edge research to cure brain cancer. But not too long ago, he was Freddy, a nineteen-year-old undocumented migrant worker toiling in the tomato fields of central California. In this gripping memoir, Alfredo Quiñones-Hinojosa tells his amazing life story—from his impoverished childhood in the tiny village of Palaco, Mexico, to his harrowing border crossing and his transformation from illegal immigrant to American citizen and gifted student at the University of California at Berkeley and at Harvard Medical School. Packed with adventure and adversity—including a few terrifying brushes with death— Becoming Dr Q is a testament to persistence, hard work, the power of hope and imagination, and the pursuit of excellence. It's also a story about the importance of family, of mentors, and of giving people a chance." 

Title: Transforming Medical Education: Historical Case Studies of Teaching, Learning, and Belonging in Medicine. 

By: Delia Gavrus & Susan Lamb. 

Publication info: Montreal: McGill-Queen's University Press. 2022. 

Description: "In recent decades, researchers have studied the cultures of medicine and the ways in which context and identity shape both individual experiences and structural barriers in medical education. The essays in this collection offer new insights into the deep histories of these processes, across time and around the globe.Transforming Medical Education compiles twenty-one historical case studies that foreground processes of learning, teaching, and defining medical communities in educational contexts. The chapters are organized around the themes of knowledge transmission, social justice, identity, pedagogy, and the surprising affinities between medical and historical practice. By juxtaposing original research on diverse geographies and eras – from medieval Japan to twentieth-century Canada, and from colonial Cameroon to early Republican China – the volume disrupts traditional historiographies of medical education by making room for schools of medicine for revolutionaries, digital cadavers, emotional medical students, and the world's first mandatory Indigenous community placement in an accredited medical curriculum. This unique collection of international scholarship honours historian, physician, and professor Jacalyn Duffin for her outstanding contributions to the history of medicine and medical education.An invaluable scholarly resource and teaching tool, Transforming Medical Education offers a provocative study of what it means to teach, learn, and belong in medicine."