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Title: Sharing Health Data: The Why, the Will, and the Way Forward

Authors: National Academy of Medicine, The Learning Health System Series, Claudia Grossmann, Peak Sen Chua, Mahnoor Ahmed, Sarah M. Greene

Publication Information: Washington, DC: National Academies Press. 2022.

Start reading: Academic eBook Collection.

Description: Sharing health data and information across stakeholder groups is the bedrock of a learning health system. As data and information are increasingly combined across various sources, their generative value to transform health, health care, and health equity increases significantly. Health data have proven their centrality in guiding action to change the course of individual and population health, if properly stewarded and used. In the context of the COVID-19 pandemic, both data and a lack of data illuminated profound shortcomings that affected health care and health equity. Yet, a silver lining of the pandemic was a surge in collaboration among data holders in public health, health care, and technology firms, suggesting that an evolution in health data sharing is visible and tangible. This Special Publication features some of these novel data-sharing collaborations, and has been developed to provide practical context and implementation guidance that is critical to advancing the lessons learned identified in its parent NAM Special Publication, Health Data Sharing: Building a Foundation of Stakeholder Trust. The focus of this publication is to identify and describe exemplar groups to dispel the myth that sharing health data more broadly is impossible and illuminate the innovative approaches that are being taken to make progress in the current environment. It also serves as a resource for those waiting in the wings, showing how barriers were addressed and harvesting lessons and insights from those on the front lines. In the meantime, knowledge is already available to foster better health care and health outcomes. The examples described in this volume suggest how intentional attention to health data sharing can enable unparalleled advances, securing a healthier and more equitable future for all.

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Title: Ethically Challenged: Private Equity Storms US Health Care.

Author: Laura Katz Olson.

Publication info: Baltimore: Johns Hopkins University Press. 2022. 

Location: Academic eBook Collection

Description: Revealing the dark truth about the impact of predatory private equity firms on American health care.Won Gold from the Axiom Book Award in the Category of Business Ethics, the Benjamin Franklin Awards by the Independent Book Publishers Association and the North American Book Award in the Catergory of Business Finance, Finalist of the American Book Fest Best Book Social Change and Current Events by the American Book FestPrivate equity (PE) firms pervade all aspects of our modern lives. Unlike other corporations, which generally manufacture products or provide services, they leverage considerable debt and other people's money to buy and sell businesses with the sole aim of earning supersized profits in the shortest time possible. With a voracious appetite and trillions of dollars at its disposal, the private equity industry is now buying everything from your opioid treatment center to that helicopter that helps swoop you up from a car crash site. It may even control how and when you can get your kidney dialysis. In Ethically Challenged, Laura Katz Olson describes how PE firms are gobbling up physician and dental practices; home care and hospice agencies; substance abuse, eating disorder, and autism services; urgent care facilities; and emergency medical transportation. With a sharp eye on cost and quality of care, Olson investigates the PE industry's impact on these essential services. She explains how PE firms pile up massive debt on their investment targets and how they bleed these enterprises with assorted fees and dividends for themselves. Throughout, she argues that public pension funds, which provide the preponderance of equity for PE buyouts, tend to ignore the pesky fact that their money may be undermining the very health care system their workers and retirees rely on.Weaving together insights from interviews with business owners and experts, newspaper articles, purchased data sets, and industry publications, Olson offers a unique perspective and appreciation of the significance of PE investments in health care. The first book to comprehensively address private equity and health care, Ethically Challenged raises the curtain on an industry notorious for its secrecy, exposing the nefarious side of its maneuvers.

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TitleGraphic Medicine Manifesto.
Published: 2015
Available: as an eBook in Academic eBook Collection.
 
Description: "This inaugural volume in the graphic medicine series establishes the principles of graphic medicine and begins to map the field. The volume combines scholarly essays by members of the editorial team with previously unpublished visual narratives by Ian Williams and MK Czerwiec, and it includes arresting visual work from a wide range of graphic medicine practitioners. The book's first section, featuring essays by Scott Smith and Susan Squier, argues that as a new area of scholarship, research on graphic medicine has the potential to challenge the conventional boundaries of academic disciplines, raise questions about their foundations, and reinvigorate literary scholarship—and the notion of the literary text—for a broader audience. The second section, incorporating essays by Michael Green and Kimberly Myers, demonstrates that graphic medicine narratives can engage members of the health professions with literary and visual representations and symbolic practices that offer patients, family members, physicians, and other caregivers new ways to experience and work with the complex challenges of the medical experience. The final section, by Ian Williams and MK Czerwiec, focuses on the practice of creating graphic narratives, iconography, drawing as a social practice, and the nature of comics as visual rhetoric. A conclusion (in comics form) testifies to the diverse and growing graphic medicine community. Two valuable bibliographies guide readers to comics and scholarly works relevant to the field."

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Title: What Patients Teach: The Everyday Ethics of Health Care.

By: Larry R. Churchill; Joseph B. Fanning; David Schenck. Oxford University Press. 2013.

Available in our Academic eBook Collection

Description: "Being a patient is a unique interpersonal experience but it is also a universal human experience. The relationships formed when we are patients can also teach some of life's most important lessons, and these relationships provide a special window into ethics, especially the ethics of healthcare professionals. This book answers two basic questions: As patients see it, what things allow relationships with healthcare providers to become therapeutic? What can this teach us about healthcare ethics? This volume presents detailed descriptions and analyses of 50 interviews with 58 patients, representing a wide spectrum of illnesses and clinician specialties. The authors argue that the structure, rhythm, and horizon of routine patient care are ultimately grounded in patient vulnerability and clinician responsiveness. From the short interview segments, the longer vignettes and the full patient stories presented here emerge the neglected dimensions of healthcare and healthcare ethics. What becomes visible is an ethics of everyday interdependence, with mutual responsibilities that follow from this moral symbiosis. Both professional expressions of healthcare ethics and the field of bioethics need to be informed and reformed by this distinctive, more patient-centered, turn in how we understand both patient care as a whole and the ethics of care more specifically. The final chapters present revised codes of ethics for health professionals, as well as the implications for medical and health professions education." 

 

 

 

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Visit graphicmedicine.org to read graphic medicine comics and listen to some podcast episodes! 

Author Ian Williams describes graphic medicine as "the intersection between the medium of comics and the discourse of healthcare." Graphic medicine is used to highlight vulnerability, the complexity of different medical issues, patients' perspectives, and healthcare hardships. 

More information on graphic medicine: 

 

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11/30/2022
Unknown Author

Happy birthday to Dr. Jane Cooke Wright! 

           

Left: Dr. Wright in 1967. 

Middle: Dr. Wright using a microscope, unknown date. 

Right: Dr. Wright in 2011 with the American Society of Clinical Oncology (ASCO). 

Jane is remembered for her achievements in oncology. She worked with her father, who was also a doctor, on using folic acid antagonists as a viable treatment to stop tumor growth. She also found that a medication called methotrexate made chemotherapy a less life-threatening treatment option. And she invented a catheter that allowed doctors to get tumor-fighting drugs to areas of the body that were previously unreachable, including the kidneys and the spleen.


Jane was raised in a family of pioneering doctors: her grandfather was born into slavery and became a doctor after the Civil War, her step-grandfather was the first black person to graduate from Yale Medical college, and her father was the first black doctor in a New York City hospital. Jane had two daughters, one who became a psychiatrist and the other who became a clinical psychologist.

Read more: 

Watch: (Pharmacology video on "Methotrexate," the medication that improved chemotherapy)

 

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11/09/2022
Unknown Author

Happy birthday to Louis Lewin, a German pharmacologist who lived from 1850 to 1929. In 1881, Lewin wrote the book Die Nebenwirkungen der Arzneimittel, which was translated to English as The Untoward Effects of Drugs: A Pharmacological and Clinical Manual. It was the first book of its kind. 

Louis Lewin also indirectly contributed to an ongoing debate about dental amalgam fillings: do they cause mercury poisoning, or not? One of his patients was chemistry professor Alfred Stock, who died from mercury poisoning (allegedly from occupational exposure, not from his fillings). While determining the cause of his poisoning, Lewin noted that his dental fillings were a possible source. Stock wrote against further use of amalgam, which refueled the ongoing debate on the topic in Germany. 

Dental amalgam fillings do contain small amounts of mercury. Amalgam is an alloy of mercury which uniquely (and at a low cost) produces the versatility and strength required to fill and support a decaying tooth's shape. Read more in the links below! 

 

Read more:

  • About Louis Lewin on his Wikipedia page.
  • About his 1881 book, Die Nebenwirkungen der Arzneimittel, here
  • Stock's insistence that doctors cease usage of amalgam is translated to English here
  • About the history, science, and significance of dental amalgam fillings in this article in NCBI. 

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