Medical Humanities

From Amazon: "This book takes place in Merced, California, and offers an alternative perspective of epilepsy, or seizures, as seen through the lens of the Hmong people. It also provides a fresh view of Western social norms and healthcare standards."

From Goodreads: "An anthropologist and MD in the mold of Paul Farmer and Didier Fassin, Seth Holmes shows how market forces, anti-immigrant sentiment, and racism undermine health and healthcare. Holmes’s material is visceral and powerful. He trekked with his companions illegally through the desert into Arizona and was jailed with them before they were deported. He lived with indigenous families in the mountains of Oaxaca and in farm labor camps in the U.S., planted and harvested corn, picked strawberries, and accompanied sick workers to clinics and hospitals. This “embodied anthropology” deepens our theoretical understanding of how health equity is undermined by a normalization of migrant suffering, the natural endpoint of systemic dehumanization, exploitation, and oppression that clouds any sense of empathy for 'invisible workers.'"

"Since late 2001 more than fifty percent of the babies born in California have been Latino. When these babies reach adulthood, they will, by sheer force of numbers, influence the course of the Golden State. This essential study, based on decades of data, paints a vivid and energetic portrait of Latino society in California by providing a wealth of details about work ethic, family strengths, business establishments, and the surprisingly robust health profile that yields an average life expectancy for Latinos five years longer than that of the general population. Spanning one hundred years, this complex, fascinating analysis suggests that the future of Latinos in California will be neither complete assimilation nor unyielding separatism. Instead, the development of a distinctive regional identity will be based on Latino definitions of what it means to be American. This updated edition now provides trend lines through the 2010 Census as well as information on the 1849 California Constitutional Convention and the ethnogenesis of how Latinos created the society of'Latinos de Estados Unidos'(Latinos in the US). In addition, two new chapters focus on Latino Post-Millennials—the first focusing on what it's like to grow up in a digital world; and the second describing the contestation of Latinos at a national level and the dynamics that transnational relationships have on Latino Post-Millennials in Mexico and Central America."

From Goodreads: "At twelve, Howard Dully was guilty of the same crimes as other boys his age: he was moody and messy, rambunctious with his brothers, contrary just to prove a point, and perpetually at odds with his parents. Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital—or ice pick—lobotomy." Howard Dully was born and raised in San Jose, California.

From Goodreads: "A heart-wrenching, yet hopeful, memoir of a young marriage that is redefined by mental illness and affirms the power of love. Mark and Giulia’s life together began as a storybook romance. They fell in love at eighteen, married at twenty-four, and were living their dream life in San Francisco. When Giulia was twenty-seven, she suffered a terrifying and unexpected psychotic break that landed her in the psych ward for nearly a month. One day she was vibrant and well-adjusted; the next she was delusional and suicidal, convinced that her loved ones were not safe. Eventually, Giulia fully recovered, and the couple had a son. But, soon after Jonas was born, Giulia had another breakdown, and then a third a few years after that. Pushed to the edge of the abyss, everything the couple had once taken for granted was upended. A story of the fragility of the mind, and the tenacity of the human spirit, My Lovely Wife in the Psych Ward is, above all, a love story that raises profound questions: How do we care for the people we love? What and who do we live for? Breathtaking in its candor, radiant with compassion, and written with dazzling lyricism, Lukach’s is an intensely personal odyssey through the harrowing years of his wife’s mental illness, anchored by an abiding devotion to family that will affirm readers’ faith in the power of love."

From Amazon: "Several days before Christmas 2003, John Gregory Dunne and Joan Didion saw their only daughter, Quintana, fall ill with what seemed at first flu, then pneumonia, then complete septic shock. She was put into an induced coma and placed on life support. Days later—the night before New Year’s Eve—the Dunnes were just sitting down to dinner after visiting the hospital when John Gregory Dunne suffered a massive and fatal coronary. In a second, this close, symbiotic partnership of forty years was over. Four weeks later, their daughter pulled through. Two months after that, arriving at LAX, she collapsed and underwent six hours of brain surgery at UCLA Medical Center to relieve a massive hematoma. This powerful book is Didion’ s attempt to make sense of the “weeks and then months that cut loose any fixed idea I ever had about death, about illness ... about marriage and children and memory ... about the shallowness of sanity, about life itself."

From Amazon: "Armed with a degree in medieval history and a flair for the macabre, Caitlin Doughty took a job at a crematory and turned morbid curiosity into her life’s work. She cared for bodies of every color, shape, and affliction, and became an intrepid explorer in the world of the dead. In this best-selling memoir, brimming with gallows humor and vivid characters, she marvels at the gruesome history of undertaking and relates her unique coming-of-age story with bold curiosity and mordant wit. By turns hilarious, dark, and uplifting, Smoke Gets in Your Eyes reveals how the fear of dying warps our society and 'will make you reconsider how our culture treats the dead.'" This crematory was in Emeryville, California. Caitlin Doughty later founded a funeral home in Los Angeles, California.

From Amazon: "Ed Roberts: Champion of Disability Rights is a biography about Edward Verne Roberts, who, at age 14, became a quadriplegic as a result of Polio. The life he lived post-Polio was one of transformation, both for himself, and for society’s image of people with disabilities. Ed became empowered through his determination, his education, and his advocacy for supports and services that enabled him to become an independent citizen. Ed knew he was not disabled by Polio as much as he was disabled by societal responses to his disability. He fought for his own rights and the civil rights of all people with disabilities. His legacy continues to inspire access, equity, and life quality, both in the United States and abroad. This book describes his life in mission in terms that children will understand and adults will connect to. The bold and detailed artwork of the late Patrick William Connally graces each page with poetic representations of disability civil rights history." Ed Roberts's home was California's bay: he was born in San Mateo, attended college at UC Berkeley, and worked on disability rights in San Francisco.

"Embodied Politics illuminates the influential force of public health promotion in indigenous migrant communities by examining the Indigenous Health Project (IHP), a culturally and linguistically competent initiative that uses health workshops, health messages, and social programs to mitigate the structural vulnerability of Oaxacan migrants in California. Embodied Politics reconstructs how this initiative came to exist and describes how it operates. At the same time, it points out the conflicts, resistances, and counter-acts that emerge through the IHP's attempts to guide the health behaviors and practices of Triqui and Mixteco migrants. Arguing for a structurally competent approach to migrant health, Embodied Politics shows how efforts to promote indigenous health may actually reinforce the same social and political economic forces, namely structural racism and neoliberalism, that are undermining the health of indigenous Oaxacans in Mexico and the United States."

"Fading Scars: My Queer Disability, History 2nd edition is Corbett Joan OToole's deeply personal account of making history in the disability rights movement of the 20th century in Berkeley, California. Her unique perspective as a white disabled lesbian allows us to peek at the complexity of how change happens. Read all about the historic 1977 sit-in in San Francisco, California fight for the first national disability law, Section 504. Follow Corbett as she leads 50 disabled women to the United Nations Fourth International Conference on Women and co-organized the Disabled Women's Symposium which brought together over 200 disabled women from around the world."

From Goodreads: "The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast —with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill." Kate's story takes place in California and includes trips to the UC Davis Medical Center.

"As the great American work-benefit experiment erodes, companies are increasingly asking people to take responsibility for managing their own health. There's no question work and health are intertwined. But what effect does an intensely productive, globally connected, high-tech work environment have on a population largely entrusted with overseeing their own health needs? In California's Silicon Valley, a distinctive and medically diverse health culture has emerged. Being and Well-Being explores this health culture, detailing the biomedical, countercultural, and immigrant-based beliefs and practices that shape ideas about working, care-giving, and what it means to be healthy."

"Fit to Be Citizens? demonstrates how both science and public health shaped the meaning of race in the early twentieth century. Through a careful examination of the experiences of Mexican, Japanese, and Chinese immigrants in Los Angeles, Natalia Molina illustrates the many ways local health officials used complexly constructed concerns about public health to demean, diminish, discipline, and ultimately define racial groups. She shows how the racialization of Mexican Americans was not simply a matter of legal exclusion or labor exploitation, but rather that scientific discourses and public health practices played a key role in assigning negative racial characteristics to the group. The book skillfully moves beyond the binary oppositions that usually structure works in ethnic studies by deploying comparative and relational approaches that reveal the racialization of Mexican Americans as intimately associated with the relative historical and social positions of Asian Americans, African Americans, and whites. Its rich archival grounding provides a valuable history of public health in Los Angeles, living conditions among Mexican immigrants, and the ways in which regional racial categories influence national laws and practices. Molina’s compelling study advances our understanding of the complexity of racial politics, attesting that racism is not static and that different groups can occupy different places in the racial order at different times."

"Against the turbulent backdrop of politics and sexual liberation in San Francisco during the seventies, Jones recounts his coming-of-age alongside friend and mentor Harvey Milk--and, later, Milk's assassination and the ensuing riots that threatened to tear down all they had accomplished. But Jones's political aspirations were put on hold after the emergence of an insidious, unexplainable "gay cancer" that would soon become known throughout the world as AIDS. Demoralized by the tide of death and despair sweeping his community, brutally assaulted by gay-bashing thugs, and faced with the specter of his own positive diagnosis, Jones sought a way to restore hope to a world falling apart beneath his feet. What started out as a simple panel of fabric stitched for his best friend now covers a space larger than twenty-five football fields and contains over eighty thousand names. The Quilt has affected the lives of many people, bridging racial, sexual, and religious barriers to unite millions in the fight against AIDS. Stitching a Revolution is a compelling, dramatic tale with a cast of memorable characters from all walks of life. At times uplifting, at times heartwrenching, this inspiring story reveals what it means to be human and how the power of love conquers all--even death."

From Amazon: "A groundbreaking, breathtaking history of the Chinese workers who built the Transcontinental Railroad, helping to forge modern America only to disappear into the shadows of history until now. From across the sea, they came by the thousands, escaping war and poverty in southern China to seek their fortunes in America. Converging on the enormous western worksite of the Transcontinental Railroad, the migrants spent years dynamiting tunnels through the snow-packed cliffs of the Sierra Nevada and laying tracks across the burning Utah desert. Their sweat and blood fueled the ascent of an interlinked, industrial United States. But those of them who survived this perilous effort would suffer a different kind of death—a historical one, as they were pushed first to the margins of American life and then to the fringes of public memory. In this groundbreaking account, award-winning scholar Gordon H. Chang draws on unprecedented research to recover the Chinese railroad workers’ stories and celebrate their role in remaking America. An invaluable correction of a great historical injustice, Ghosts of Gold Mountain returns these “silent spikes” to their rightful place in our national saga."

From Amazon: "How do you become a farmer? The real questions are: what kind of person do you want to be? Are you willing to change? How do you learn? What is your vision for the future? In this poignant collection of essays, Epitaph for a Peach author David Mas Masumoto gets ready to hand his eighty-acre organic farm to his daughter, Nikiko, after four decades of working the land. Declaring that “all of the gifts I have received from this life are not only worthy of sharing, but must be shared,” Mas reflects on topics as far-ranging as the art of pruning, climate change, and the prejudice his family faced during and after World War II: essays that, whether humorous or heartbreaking, explore what it means to pass something on. Nikiko's voice is present, too, as she relates the myriad lessons she has learned from her father in preparation for running the farm as a queer mixed-race woman. Both farmers feel less than totally set for the future that lays ahead; indeed, Changing Season addresses the uncertain future of small-scale agriculture in California. What is unquestionable, though, is the family's love for their vocation—and for each other."

From Amazon: "Lynn Stephen’s innovative ethnography follows indigenous Mexicans from two towns in the state of Oaxaca—the Mixtec community of San Agustín Atenango and the Zapotec community of Teotitlán del Valle—who periodically leave their homes in Mexico for extended periods of work in California and Oregon. Demonstrating that the line separating Mexico and the United States is only one among the many borders that these migrants repeatedly cross (including national, regional, cultural, ethnic, and class borders and divisions), Stephen advocates an ethnographic framework focused on transborder, rather than transnational, lives. Yet she does not disregard the state: She assesses the impact migration has had on local systems of government in both Mexico and the United States as well as the abilities of states to police and affect transborder communities. Stephen weaves the personal histories and narratives of indigenous transborder migrants together with explorations of the larger structures that affect their lives. Taking into account U.S. immigration policies and the demands of both commercial agriculture and the service sectors, she chronicles how migrants experience and remember low-wage work in agriculture, landscaping, and childcare and how gender relations in Oaxaca and the United States are reconfigured by migration. She looks at the ways that racial and ethnic hierarchies inherited from the colonial era—hierarchies that debase Mexico’s indigenous groups—are reproduced within heterogeneous Mexican populations in the United States. Stephen provides case studies of four grass-roots organizations in which Mixtec migrants are involved, and she considers specific uses of digital technology by transborder communities. Ultimately Stephen demonstrates that transborder migrants are reshaping notions of territory and politics by developing creative models of governance, education, and economic development as well as ways of maintaining their cultures and languages across geographic distances."

From the publisher: "Choice Outstanding Academic Book! This volume provides a vivid portrait of a transnational migrant community anchored in both the remote Mixteca region of Oaxaca and the San Diego metropolitan area. Drawing on surveys and interviews with migrants and potential migrants conducted by a binational research team in 2007-2008, the contributors show how the Oaxaca-based and the California-based natives of the town of San Miguel Tlacotepec have built parallel communities separated by an increasingly fortified international border. Their findings offer important new insights on a range of vital issues in US immigration policy, including the efficacy and impact of border enforcement, how undocumented status affects health and education outcomes, and how modern telecommunications are shaping transborder migrant networks."

From Stanford Publishing: "If California were its own country, it would have the world's fifth largest immigrant population. The way these newcomers are integrated into the state will shape California's schools, workforce, businesses, public health, politics, and culture. In Immigrant California, leading experts in U.S. migration provide cutting-edge research on the incorporation of immigrants and their descendants in this bellwether state...Contributors to this volume cover topics ranging from education systems to healthcare initiatives and unravel the sometimes-contradictory details of California's immigration history."

From Goodreads: "Since 1980, the number of people in U.S. prisons has increased more than 450%. Despite a crime rate that has been falling steadily for decades, California has led the way in this explosion, with what a state analyst called “the biggest prison building project in the history of the world.” Golden Gulag provides the first detailed explanation for that buildup by looking at how political and economic forces, ranging from global to local, conjoined to produce the prison boom."

From Goodreads: "This book immerses the reader in the world of homelessness and drug and alcohol abuse in the contemporary United States. For over a decade Philippe Bourgois and Jeff Schonberg followed a social network of two dozen heroin injectors and crack smokers in the San Francisco drug scene, accompanying them as they scrambled to generate income through burglary, larceny, panhandling, recycling, and day labor. Righteous Dopefiend interweaves stunning black-and-white photography with vivid dialogue, oral biography, detailed field notes, and critical theoretical analysis to viscerally illustrate the life of a drug addict."

From Goodreads: "A debut collection of poetic, linked essays investigating the past and present state of California, its conflicting histories and their impact on a writer's family and life. California has been advertised as a destiny manifested for those ready to pull up their bootstraps and head west across to find wealth on the other side of the Sierra Nevada since the 19th century. Across the seven essays in the debut collection by José Vadi, we hear from the descendants of those not promised that prize. Inter State explores California through many lenses: an aging obsessed skateboarder; a self-appointed dive bar DJ; a laid-off San Francisco tech worker turned rehired contractor; a grandson of Mexican farmworkers pursuing the crops they tilled. Amidst wildfires, high speed rail, housing crises, unprecedented wealth and its underlying decay, Inter State excavates and roots itself inside those necessary stories and places lost in the ever-changing definitions of a selectively golden state."

From Amazon: "Los Angeles incarcerates more people than any other city in the United States, which imprisons more people than any other nation on Earth. This book explains how the City of Angels became the capital city of the world's leading incarcerator. Marshaling more than two centuries of evidence, historian Kelly Lytle Hernandez unmasks how histories of native elimination, immigrant exclusion, and black disappearance drove the rise of incarceration in Los Angeles. In this telling, which spans from the Spanish colonial era to the outbreak of the 1965 Watts Rebellion, Hernandez documents the persistent historical bond between the racial fantasies of conquest, namely its settler colonial form, and the eliminatory capacities of incarceration."

"Moral Laboratories is an engaging ethnography and a groundbreaking foray into the anthropology of morality. It takes us on a journey into the lives of African American families caring for children with serious chronic medical conditions, and it foregrounds the uncertainty that affects their struggles for a good life. Challenging depictions of moral transformation as possible only in moments of breakdown or in radical breaches from the ordinary, it offers a compelling portrait of the transformative powers embedded in day-to-day existence. From soccer fields to dinner tables, the everyday emerges as a moral laboratory for reshaping moral life. Cheryl Mattingly offers vivid and heart-wrenching stories to elaborate a first-person ethical framework, forcefully showing the limits of third-person renderings of morality."

From Book Culture: "One of the world's preeminent cultural anthropologists leaves a last work that fundamentally reconfigures how we study most other cultures. From the perspective of Western modernity, humanity inhabits a disenchanted cosmos. Gods, spirits, and ancestors have left us for a transcendent beyond, no longer living in our midst and being involved in all matters of everyday life from the trivial to the dire. Yet the vast majority of cultures throughout human history treat spirits as very real persons, members of a cosmic society who interact with humans and control their fate. In most cultures, even today, people are but a small part of an enchanted universe misconstrued by the transcendent categories of "religion" and the "supernatural." The New Science of the Enchanted Universe shows how anthropologists and other social scientists must rethink these cultures of immanence and study them by their own lights."

From Goodreads: "One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people. From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love." California plays an important role in many of the stories in this collection.

From Amazon: "Narrative medicine is a fresh discipline of health care that helps patients and health professionals to tell and listen to the complex and unique stories of illness. The Principles and Practice of Narrative Medicine expresses the collective experience and discoveries of the originators of the field. Arising at Columbia University in 2000 from roots in the humanities and patient-centered care, narrative medicine draws patients, doctors, nurses, therapists, and health activists together to re-imagine a health care based on trust and trustworthiness, humility, and mutual recognition."

From Amazon: "This concise, easy-to-read handbook prepares you to relate to individuals from different cultures. Use it in class and clinical now and as a reference throughout your career. The Purnell Model is your guide as you explore 34 different cultures and the issues that you need to be sensitive to…including cultural variations regarding personal space, dietary preferences, communication, symptom management, activities of daily living, and religious and health practices." Purnell also created a well-known model for Cultural Competence.

From SpringerLink: "Each chapter describes and explains the common and specific health conditions of each population, using the 12 cultural domains identified in Purnell's Cultural Competence model."

From Amazon: "This inaugural volume in the Graphic Medicine series establishes the principles of graphic medicine and begins to map the field. The volume combines scholarly essays by members of the editorial team with previously unpublished visual narratives by Ian Williams and MK Czerwiec, and it includes arresting visual work from a wide range of graphic medicine practitioners. The book’s first section, featuring essays by Scott Smith and Susan Squier, argues that as a new area of scholarship, research on graphic medicine has the potential to challenge the conventional boundaries of academic disciplines, raise questions about their foundations, and reinvigorate literary scholarship―and the notion of the literary text―for a broader audience. The second section, incorporating essays by Michael Green and Kimberly Myers, demonstrates that graphic medicine narratives can engage members of the health professions with literary and visual representations and symbolic practices that offer patients, family members, physicians, and other caregivers new ways to experience and work with the complex challenges of the medical experience. The final section, by Ian Williams and MK Czerwiec, focuses on the practice of creating graphic narratives, iconography, drawing as a social practice, and the nature of comics as visual rhetoric. A conclusion (in comics form) testifies to the diverse and growing graphic medicine community. Two valuable bibliographies guide readers to comics and scholarly works relevant to the field."

From Amazon: "Despite modern medicine’s infatuation with high-tech gadgetry, the single most powerful diagnostic tool is the doctor-patient conversation, which can uncover the lion’s share of illnesses. However, what patients say and what doctors hear are often two vastly different things. Patients, anxious to convey their symptoms, feel an urgency to “make their case” to their doctors. Doctors, under pressure to be efficient, multitask while patients speak and often miss the key elements. Add in stereotypes, unconscious bias, conflicting agendas, and fear of lawsuits and the risk of misdiagnosis and medical errors multiplies dangerously. Though the gulf between what patients say and what doctors hear is often wide, Dr. Danielle Ofri proves that it doesn’t have to be. Through the powerfully resonant human stories that Dr. Ofri’s writing is renowned for, she explores the high-stakes world of doctor-patient communication that we all must navigate. Reporting on the latest research studies and interviewing scholars, doctors, and patients, Dr. Ofri reveals how better communication can lead to better health for all of us."